Missing, well-documented etiology for CFS: Neurally Mediated Hypotension
Some links on the topic:
Need feedback on link i wanted to add to External Links Section
I have a Chronic fatigue Syndrome and Fibromyalgia Forum / Blog I wanted to add to the links section. Ive been sick for 7 years and have undergone a multitude of treatments, from hyperbaric oxygen, to garth nichoson protocol, Dr. Jay Goldstein Protocol, diet,vitamins and almost everything that is available to try. Ive researched Chronic Fatigue for years and Blog every day about new research and my personal experiences with treatments, supplments, different types of diets. This site is more focused on people sharing what treatments work for them and has sections for people to discuss the newer protocols, like garth nicholson protocol,marshall protocol,blasi protocol. Its a newer site but already has 300 post and about 100 blog posts. Hopefully it will fit of the cfs page in the External Links Section The site is http://www.chronicfatiguetreatments.com thank garrett
thanks garrett
-- Gdubs12345 05:28, 24 August 2006 (UTC)Yes, it is one of thousands of similar pages. Please indicate why it is more useful that any other resource in the same category. JFW | 01:50, 27 August 2006 (UTC)
garrett
-- Gdubs12345 05:28, 24 August 2006 (UTC)Thorough Article Yet Missing a Key Theory
I suffered from CFS for nine years, and recovered mysteriously and quickly in 2004. Then, after a couple months of resuming old habits of overexertion (making up for lost time), I fell victim to extreme anxiety. After a good deal of research and personal experimentation, I discovered that the anxiety is somehow related to CFS. I stumbled across a theory and recovery regimen that appears to actually work, and also explains how I finally recovered.
Briefly, the theory is that a dysfunction of the adrenal cortex, and possibly the medulla as well, results in a hormonal imbalance that causes a multitude of symptoms. The normal sleep cycle is disrupted by the imbalance, and this causes further symptoms to appear. Sleep disruption also results in as a vicious cycle since the lack of proper sleep places stress on the adrenal glands.
For some reason, hormonal support by taking low doses of cortisol (Cortef), when taken properly, allows the adrenal gland to recuperate. After some period of time, new symptoms emerge (e.g. irritability, anxiety, sensitivity to light) that seem to indicate an excess level of epinephrine. Continuing the cortisol regimen seems to eventually alleviate those symptoms as well. However, this part of the recovery process can be hastened by taking a supplement that inhibits adrenal function. Phosphorylated serine (Seriphos) is one such supplement that has been used successfully by Dr. Gerald Poesnecker, author of Chronic Fatigue Unmasked 2000, for decades. It was after reading his book that I realized that my cure was a result of my two-year Cortef regimen, passing me through the irritability stage, followed by taking the drug ketoconazole for a month.
Ketoconazole is an antifungal agent, and I took the drug to clear up a yeast infection. While taking the drug, I experienced unusual daytime sleepiness. (At the time, I attributed the sleepiness to my CFS. But now I know that lassitude is a side-effect of ketoconazole.) Upon discontinuing the ketoconazole, I immediately recovered from all CFS symptoms, and I had to quit taking Cortef as it was then having a stimulative effect. It wasn't until the spring of 2005 that I made the connection, discovering that one of ketoconazole side effects is adrenal suppression, similar to the effect produced by phosphorylated serine .
I am now convinced that the root cause of CFS is a hormonal imbalance caused by a state of adrenal dysfunction, and is apparently reversible in at least some cases, if not most. This hypothesis can also explain the multitude of symptoms shared by other conditions, such as Gulf War Syndrome, Post Polio Syndrome, and to some extent Post Traumatic Stress Syndrome. I believe that the common thread is shock placed on the adrenal glands by conditions leading up to all these conditions.
The article is good.
And should stay that way. Someone from an anonymous IP edited the content and cut it by more than half, as well as disrupting all of the formatting. Let's keep the editing to whenever it's necessary, not when your opinion doesn't jibe with the facts presented. Thanks.
POV and things
I am doing a large edit on this article. There is a lot of POV and poor formatting. Not every CFS patient has met with medical skepticism and not every patient bears a grudge towards the medical profession for failing to identify this protean condition immediately. Also: I miss the Fukuda and Holmes classifications in the article. JFW | 12:42, 8 Nov 2004 (UTC)
Thanks Ray. I'm presently reading a rather good 1998 review by some American specialists, and I'm going to try & brush up on the scientific theories that are presently being examined. Ideally, this article should not reflect the erroneous view that "doctors don't believe in CFS". Some doctors possibly do, like most new disease entities were not accepted by many practicioners until many years after their original formulation.
Ideally we should seperate the signs & symptoms into two categories: those objectively present (e.g. immunodysregulation) and those experienced by CFS sufferers. I am also planning to insert all criteria of the Holmes classification. JFW | 20:16, 8 Jan 2005 (UTC)
I feel that the following from the BBC should be incoperated:
ome doctors have been sceptical as to whether ME/CFS exists as a real disease or is "all in the mind".
However, this controversy should have been effectively ended by a report from the Chief Medical Officer for England in 2002, which concluded that ME/CFS is a genuine and disabling condition.
CFS and ME are also classified by the World Health Organisation as neurological disorders. In 2004, the Department of Health announced £8.5 million of ring-fenced funding for new specialist services to deal with ME/CFS. --Taghawi-Nejad 16:46, 4 July 2006 (UTC)
This is from the "Controversies" section: "As is common historically with new or unexplained conditions, many people are inclined to believe that a condition with few or no specific and/or exclusive biomedical markers may be, or even must be, psychological in origin. This has led to frustration in many patients, who feel strongly that their disability is not psychological, but biological, in cause and effect. Some more vocal patients' groups maintain that research into CFS (ME) in the UK has been mostly hijacked by the psychologists/psychiatric lobby, who they claim hold significant power within the medical fraternity, with a resultant "abuse of patients' rights"."
That reads very POV and biased, and it's tone is far from encyclopediac. It should read something more like this: "Many people are inclined to believe that a condition with few or no specific biomedical markers may be psychological in origin. This had led to a frustration in many patients, who feel that their disability is not psychological, but biological." The last sentence needs a citation, as well as a re-write. I'm going to discuss it here before doing it, since this is an active and controversial page it seems. 207.69.248.49 19:53, 26 November 2006 (UTC)
References
Are all the references that were recently added actually sources from which information in this article was derived? If not, I propose they be deleted. They may be good sources of information (I don't know either way, as I haven't read them), but I'm under the impression that the "References" section of any article is for the specific purpose of corroborating claims made in the article itself. Icarus 06:04, 12 July 2005 (UTC)
Please acquaint yourself with Wikipedia guidelines regarding sources. I only included those studies I've actually read. If the formatting is incorrect please read Wikipedia policy on Newcomers and try again. Mr. or Ms. Wolff, I suggest you read Wikipedia's policy on politeness and flaming.
Medicaljournalist 21:20, 8 August 2005 (UTC)
Nomenclature section
The Nomenclature section seems rather biased and inflammatory. The disorder has multiple names mostly as a result of the confusion as to its origin, and terms like "misleading" should at least be blunted so as to not imply an actual intention to mislead.
Guaifenesin protocol
I just wanted to mention a treatment that I'm on that seems to have some effect on my fatigue, although there's reason to think it's strange that it works. To make a long story short, there are some that believe that Fibromyalgia and CFS are related. I heard about the Gaifenesin protocol and decided to try it. My research suggests that Gaifenesin isn't harmful to take and doesn't have any long-term effects (this may certainly not be true). I have a book on this and followed the protocol in the book. Just as it says, for about a week or two after starting, I felt lousy, then I noticed that my energy level was noticably better. If I quit (like I did when I went on a trip to Japan), it takes about a week for me to notice the severe fatigue coming back. Of course, just because it appears to work doesn't mean there isn't a significant placebo effect. Also note that this does not in any way CURE the problem--it only improves the symptoms noticabl
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